Here I go...
I've been wanting to do this for a long time. However, I'm about as technically savvy as our hamster, so it's a pretty daunting task to set up a blog! We have four beautiful kids who I am writing this for and about, and I hope this is a way we can keep family and friends up to date on the laughter, tears, milestones, and joyful chaos that we call "our life".
I always wanted four kids, a big family. Alex said he wanted three, and then we'd see. I thought it would be incredible to have a big, boisterous, joyful, chaotic, loving family. I wanted kids all around, toys spread throughout the house for me to constantly step on, someone always yelling "MOMMY!!!", and love love love. I knew my heart would grow and grow with each new baby, and the love we would have in our family would keep us strong through any obstacles life threw at us. Little did I know.
A little background to catch you up to speed: We have twin boys who are 9, Jonah and Ben. Jonah is four minutes older than Ben, he will have you know. They were born at 29 weeks, and have had to overcome many obstacles due to their prematurity. We'll talk about that a different day. The boys have both been diagnosed with Sensory Processing Disorder, Tourette Syndrome, ADHD, Bipolar Disorder, Dysgraphia, and anxiety. We have had years and years of therapies- occupational therapy, physical therapy, counseling, developmental therapy...and we are beginning to really see the benefits from all those hours of therapy. The boys are sweet, engaging, hilarious, smart, brave, creative, and kind. They also happen to have some special needs. Ella is 2. "Ella" means "complete", and also "fairy princess", which both suit her perfectly. She is the girliest girl you will ever meet, all tutu's and pink. She has completed our family in a way we only ever dreamed was possible. Ella is affectionate, passionate, intuitive, kind, and playful. She was born 7 weeks early, and...you guessed it, is just going through the process of beginning therapy to address some special needs that are popping up. She is getting physical therapy to help her with some muscle/strength deficits, and occupational therapy to address her sensory issues.
This past week, Aidan was officially diagnosed with ADHD and Ella started therapy- OT and PT. A double whammy for Mama. Aidan already has the diagnosis of Tourette Syndrome, Sensory Processing Disorder, and some speech issues. It was a momentous week at our house.
We go through times where things are even keel, the kids are healthy and their behavior is manageable. Then there are times that are painful and difficult to get through. This week was a hard one. Even though we've been through the whole process with Ben and Jonah-- the diagnosing, the medication trials, the doctor's appointments, the neuropsychological testing- it does not get easier. As I drove to the psychiatrist appointment for Aidan this week, I was surprised that I was feeling as sad and anxious as I was. I knew what he would be diagnosed with, I knew what the psychiatrist would say. But I was still dreading it. Dreading the whole thing. Dreading the 'officialness' of it. Of what it means for Aidan, the meds he will have to try that might have side effects, the testing, the psychiatrist appointments, rallying his team of therapists to have support for a special ed plan at school, going through that whole process with the school...whew. I'm tired just thinking about it. I felt, driving to the psychiatrist that day, the same way I feel every time I have to go to the dentist (which I have a huge phobia about), I just want to run away. I tell Alex this EVERY time I have to go to the dentist- let's just run away!! I want to leave and forget about this and just not do this. So I cranked up my music, and tried to sing away my blues, and force myself to drive the miles to the psychiatrist's office. My blues didn't disappear, but I did make it to the doctor's office. Where yes, Aidan was officially diagnosed with ADHD. On top of Tourette's. And whatever language disorders he has that we haven't quite figured out yet.
Four incredibly brave, resilient children. Four kids who have special needs. It's a daily adventure, and it's always joyfully chaotic at our house.
6 comments:
Carrie, your message carries such strength and love that I know whatever life throws at you and your family will be handled with grace. You inspire me, as I'm sure you inspire others, to be a better, more giving person, and I look forward to see more stories of your amazing family. Thank you for sharing this with us!
Carrie- you and Alex are amazing parents! I still remember visiting you in the hospital when you had Jonah and Ben. They were so small, but now they, along with Aidan and Ella are growing and healthy, and it is all thanks to you guys and the amazing job you do as parents.
Carrie - I LOVE that YOU were "brave" enough to start a blog! I am so happy to have a place where I can keep up with your family a little better than Facebook. And after reading it and hearing your voice through your writing, I miss you even more! :)
jesi
My dearest bestest friend! I LOVE this blog and I love feeling like I am sitting right across from you hearing you tell me all this! And I wish I was doing just that. (I have a very vivid picture of a café in Dublin in mind =).) You, my dear, have such a gift. When God created you, he put in the biggest heart he could find, along with the greatest patience, wisdom, joy, creativity and endurence. I do not know ANYONE like you! You are AMAZING! So is your family. The kids are so sweet =) SO looking foreward to visiting you summer 2013.
Thank you all for your love and support! I'm so lucky and blessed to have you in my life!!
Is your kids' special need ADHD?
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